DAX IS HOME (finally)

So we got there Thursday morning at 11 for registration and checking in, then after a short wait we were called back and they breifly explained what was going to happen. Then they placed his PhProbe up his nose...no sedation...which is good but quite frankly i am not sure i would like someone sticking a hose up my nose and down my throat while wide eyed. They had a little difficulting because he didn't want to swallow at all (well duh, he doesn't even eat food very well). After they placed the tube they took him to get an x-ray to make sure the probes were placed correctly. In the x-ray they found a small dark circle...they thought it was something on the table or his clothes...but sure enough he must have swallowed a coin. crazy boy, he is always putting stuff in his mouth...they weren't too alarmed about it thought and we went up to our room in the hospital.

It is hard for a little active boy to be in such a small room. he was such a good sport about it and the nurses kept telling us me was such a good sport. Just very active.
Dax loves beds, at home he loves to jump and play with the pillows and just roll around, he played in his crib for a little bit, but then he got bored.
it was such a long day for him and he wasn't taking a nap. who could with the arm splints on, so i walked him for a mere hour and a half just to get him to fall asleep for 40 minutes. i don't blame him though who could sleep with your arms like that. i left him in the stroller cause i dare not move him. As I was walking the halls, I just about started crying. maybe from exhaustion, but I just started thinking about all the children. most casues were far worst from dax and what a way to start out life by being in the hospital. There was one family who i watched as i walked the halls (i should say hall there was only one and i walked it a ton), there was a sister just getting there...she seemed to be about 4 year old. she was getting a protective gown on, mask and gloves and she asked the mom...will i get to hold her today...is she getting better. The mom replied you can hold her for a little bit but she is really tired today...the girl was so happy. it made me really sad and i had to fight back tears really hard.

jon stayed with him that night and i went and got dayna. Dayna was such a trooper although she didn't sleep much concerned about daddy and dax. Dayna stayed with Waveney and her kids Reese and Sydney. They were so good to her taking her to the park and zoo and playing outside. Dax was doing well with his probes in that he was able to take off his splints because he was not playing with it anymore. I am so glad he is such a trooper.

So the diagnosis...his barrium swallowing test came back normal. he has a mild cause of reflux, but the dr. seems to think that the main issue is asthma. Which is the test he is going in for on Tuesday. he says all the systems i tell him about, the times that he coughed and his "sick old man's cough" all lead towards asthma. He also said that they should have done that test instead of the swallowing test but there was a scheduling mistake...anyways back on tuesday for an asthma test which they sedate him.

I know my experience is not nearly what some of you have been through. My very dear friend lived in a hospital for 6 and a half months...i would just go insane. Her baby was born without an immune system (bubble boy disease) and she ended up getting a bone marrow transplant. I have a new appreciation for her strong attitude and testimony. As for me...I went crazy and was going crazy again by the time i left!!